Four Days?
I really haven't posted since Saturday? This whole thing is seriously messing with my head. I can't keep track of the days, and I'm so tired all the time. I was at my small lunch group today -- Tuesdays and Thursdays, in the math department office -- and one of the others asked how I was doing on the prednisone. I said "Well, the room's not spinning, but I wouldn't say that the edges are exactly clear." And that's how I am. I don't know if it's the Crohn's, or the meds, or the lack of sleep. And last night was a pretty good night, sleep-wise, for me, anyway.
The worst time of the day, I think, is the first few hours. I am so tired that I can barely move, yet I'm awake, and I go through the routine of having breakfast, getting dressed, and going to work. Then once I get there I can hardly move. I sit at my desk and do what I can do there, but I'm mostly in a fog, although if I need to get up and do something, or talk to someone, I do it with perfect clarity. And then I collapse back in my chair with a deep sigh. Once the clock hits ten, I'm a little more alive. And I make it through the day, which is really all I need to do.
And I have no appointments of any kind any day this week after school, so that's a good thing, too. Although I think I may call the doctor's office tomorrow and see if I can get the name of a nutritionist or dietitian to go to. I just don't see the point of me stumbling blindly through all this when there's probably someone who can really help me work out the details. Today, for example, I'm doing an experiment and not having bread. Why? I have no idea, but I eat a lot of bread, and I guess I wanted to see if it would make a difference. (So far, no.)
Otherwise, no particular developments for me. R should be calling shortly, and then I think I'll make a nice little omelet. No cheese, but I have mushrooms, and canned asparagus, and a little avocado. We'll see how that works out. (But no toast.)
WATCHING L/O :: ENTRY #1668
There's this column printed in our newspaper that's sort of like Dear Abby, but it's written by a doctor. Someone wrote in saying they have IBS, but they found this diet in which they avoided these "trigger foods," and since being on this diet, they've had very little problems. Here is the link for the article; the very first question relates to IBS. I thought of you when I read it, and perhaps the website mentioned (HelpforIBS.com) could have some ideas until you get to the dietitian.
ReplyDeleteA dietitian/nutritionist is a good idea until you learn what will and won't work for you. At a luncheon for Crohn's patients some years ago, I listened to conversations and heard conflicting opinions. Well, everyone is different, right? And IBS and Crohn's aren't the same thing either, but they have some things in common.
ReplyDeletei made a onetruemedia thing about my dad with that song... it makes me cry every time i hear it....
ReplyDelete